#9209
Helen Tyrrell
Participant

Q1: What services would you consider referring to for Eve to remain at home?

Dementia Nursing Team, Physiotherapist, Occupational Therapist and consider carers. In addition the GP / pharmacist can review medications and local council can sometimes assist with other supportive services and provision of equipment / adaptations

Q2: Eve has Alzheimer’s disease, and her son and daughter are both inputting into her care. Who should be making the decisions about Eve’s care?

Eve should be supported to the make the decisions that she has capacity to make. Has she made an Advance Directive or List of Wishes? Her mental capacity should be assessed for each decision that needs to be made. If Eve has capacity, she should be involved in a discussion about who else (if anyone) she wants to be involved in decisions about her care.
A discussion should also be had about her about future needs and registering a LPA for the time when she does not have capacity.
If Eve does not have capacity at this time for the level of decision-making required consider involving an independent advocate. The family’s wishes should be respected, but if Eve has capacity she can make her own decisions. It can be difficult if members of the family have differing opinions.
Is Eve’s confusion exacerbated by the UTI and time at hospital? It would be better to explore some of the less urgent issues when the UTI is resolved.

Q3: It is ok to adapt the home to ensure that Eve does not do things that may put her at risk. Stopping her from going into the kitchen area by using black mats next to the door is an effective way to manage falls.

No, this is not good. It is not supportive and is going to cause further complications within Eve’s house and life.

Q4: What did you understand from the answerphone messages left on Eve’s telephone? How did these messages sound to you? How do you feel about putting yourself in Eve’s shoes and hearing the answer phone messages as if you were her?

Eve sounded like she did not fully understand the questions and there was some evidence of memory loss or confusion. She was very stoic and did not want to trouble anyone.
Josie (daughter) sounded like she was dismissive of Eve’s condition and history of falls and did not seem to acknowledge any problems / concerns with Eve. There could be lots of reasons for this, it is not necessarily deliberate neglect.
John (son) appeared to acknowledge some of the issues, but did not know how to address them.
If I was Eve, I would be worried that something was happening to me that I did not understand and had no control over. I would feel frightened and maybe angry or embarrassed that I could no longer fully manage my independence. I would feel sad that I felt so lonely and like I was just waiting. I would be worried that I was causing a problem between my son and daughter. I would be worried about being a problem.

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