I agree with what others have put and would also like to mention the potential for needing financial help, supporting a very unwell child could have an impact on the parent’s ability to work both emotionally and physically due to caring for and attending appointments with Daisy. Also even if parents do have a steady income by whatever means the cost of living could cause financial worries, for example, Daisy may need the heating on more to stay well or need power for oxygen etc., Help is available and they could seek advice from the government directly or via their named nurse or key worker.
